Gregg Kaloust

Griffin, Brian and Gregg KaloustMy grandson Griffin was diagnosed with DMD almost 2 years ago. He is still doing ok, but struggles with stairs, etc. If we don’t solve this Duchenne koan in a few years he’ll be too weak to walk, and he’ll have trouble drawing a full breath. I will need to carry him, his dad Brian, and his mother, my daughter Maggie, up that mountain. One of my daughters asked whether I was afraid of this trek. No. If at altitude I find myself weakening, and unable to breathe, I’ll think of Griffin, and he’ll carry me. He has DMD, but it does not have him. He is fearless, and my hero. How can I be afraid of anything?